How Do we Estimate Quality Adjusted Life Years (Qalys) in Rare Diseases? A Case Study in Hypophosphatasia
نویسندگان
چکیده
منابع مشابه
Problems and solutions in calculating quality-adjusted life years (QALYs)
The quality-adjusted life-year (QALY) is a measure of the value of health outcomes. Since health is a function of length of life and quality of life, the QALY was developed as an attempt to combine the value of these attributes into a single index number. The QALY calculation is simple: the change in utility value induced by the treatment is multiplied by the duration of the treatment effect to...
متن کاملBaccalaureate Nursing Curriculum: Its Adjustment with Burden of Diseases as “Disability Adjusted Life Years” in Iran
Introduction: Nursing education has to be planned considering the community’s health needs based on the most recent criteria introduced by World Health Organization. The purpose of this study was to determine whether nursing curriculum conform to the burden of diseases as Disability Adjusted Life Years in Iran in 2003. Methods: In this comparative study, the etiology of burden of diseases base...
متن کاملA Rare Case of Neonatal Hypophosphatasia: A Case Report
Hypophosphatasia is a rare hereditary disorder of bone metabolism.In this article, we presented the case of a male infant with a soft skull and short, deformed limbs at birth, followed by seizures and respiratory distress during admission in the neonatal intensive care unit (NICU). Prenatal ultrasound showed limb hypoplasia, skull hypomineralization, and polyhydramnios. Seizures occurred on day...
متن کاملThalassemia Major: how do we improve quality of life?
BACKGROUND Thalassemia Major is a preventable genetic disorder characterized by abnormal hemoglobin synthesis and lifelong blood transfusions. The children suffering from Thalassemia Major have poor quality of life. This study was conducted to assess the factors influencing quality of life of these children and how it can be improved. METHODS A descriptive cross sectional study was conducted ...
متن کاملAre Nursing Students’ Thesis Topics in Accordance with Burden of Diseases as Disability Adjusted Life Years in Iran?
Abstract Introduction: Research is the basis of nursing and should be in accordance with society’s health needs. The purpose of this study was to determine whether the master theses’ subjects in nursing conform to the burden of diseases as Disability Adjusted Life Years (DALYs). Methods: In this comparative study, 373 researches registered in the lists of school libraries or university web ...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Value in Health
سال: 2015
ISSN: 1098-3015
DOI: 10.1016/j.jval.2015.09.2342